The Campus HIV/AIDS Support Unit is an initiative that was founded by The Centre for HIV/AIDS Networking (HIVAN). After three successful years, it has been formally incorporated into the University of KwaZulu-Natal's AIDS Programme.
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One of the most frequently cited challenges around the fight against HIV/AIDS is a lack of accurate and informed information. The Campus HIV/AIDS Support Unit Resource Centre intends to address this challenge by having available current information on the epidemic, both at a socio-behavioural level as well as a biomedical level. Information brochures, videos and books will also be available. Information sessions will be held at the centre and staff training will be on-going.
As another strategy to ensure adequate information and support is being given to students, a peer education programme is being planned at the Howard College campus. A similar programme has already been in place for a number of years at the Pietermaritzburg Campus. This programme will be facilitated both by internal and external trainers.
Each school at the University of KwaZulu-Natal will be encouraged to have a volunteer staff member trained by the Unit in basic HIV/AIDS information and counselling skills. The objective is to have an "HIV/AIDS-friendly" person at each school for students to approach should they need to discuss HIV/AIDS-related issues, such as how it may be impacting on their studies.
In a similar vein, University residence Life Officers will also be approached to volunteer their services to become trained as HIV/AIDS lay counsellors. Students living in residences will then have someone whom they can approach for information and counselling.
"Drowning in the sea of sex" - communications, counselling and compassion - Judith King, HIVAN Media Office
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Tesfagabir Tesfu
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Tesfagabir Tesfu did not set out to become involved with HIV/AIDS pre- and post-test counselling when he came to the University of KwaZulu-Natal's Durban campus from Eritrea nearly 18 months ago. He had been a reporter in his country's Ministry of Information for over two years after graduating with a BA in English, when his employers offered him a bursary to study for a Master's degree in "Health Promotion through Entertainment-Education" at UND's Centre for Culture, Communication and Media Studies.
Now in the final stages of his MA programme, Tesfagabir is working on his thesis, which involves an evaluation of the HIV/AIDS Voluntary Counselling and Testing Programme offered by the University of Durban-Westville. In support of his research, he decided to enrol for an HIV/AIDS Pre- and Post-test Counselling course, run during the mid-year vacation by Kerry Frizelle of UND's School of Psychology in association with HIVAN, the Centre for HIV/AIDS Networking.
"The content of the Counselling course will inform the development of a questionnaire that I am composing for use in the evaluation process," explains Tesfagabir. "and I feel much more confident now about my levels of knowledge, in terms of both basic facts and broader knowledge about the HIV/AIDS epidemic. But the eight days of training has brought me so much more than this research support - I have learnt many things beneficial to my personal and professional development."
He reflects that the most significant lesson he will take from the course is the awareness of the need, when engaging fully with a person seeking counselling, to suspend personal judgement and to set aside one's own deeply held attitudes and beliefs. "This is not an easy thing to do," he admits. "In my country, sex is not an 'open' topic of discussion; it is never explicitly portrayed in movies or on television, and pornography is banned in video-shops. One doesn't even see 'deep kissing' in public, and there is no exposure regarding alternative sexual orientations or lifestyles."
Eritrea has a population of approximately 3,5 million, roughly half of whom are Muslim and the other Christian, and incorporating nine different ethnic groups. According to a UNAIDS briefing on AIDS prevention interventions amongst youth in Eritrea (Best Practice Collection Issue 2, September 2000, Page 14), HIV prevalence has been growing rapidly since 1998, doubling every 18 months.
The study confirms that traditionally, young people have difficulty in obtaining information on health education, social and sexual matters; the family is typically unprepared to deal with such subjects and the school system does not cater to the physical and psychological needs of the young. The National Union of Eritrean Youth and Students (NUEYS) is working to address these problems, through educational and media programmes incorporating discussion around dating, friendship, love and sex, school and peers, as well as basic facts about HIV and AIDS.
Tesfagabir believes that the media have a vital role to play in fighting the epidemic in his country, and specifically in the use of entertainment to educate and truly engage audiences. "Although my impression is that our media focus on HIV/AIDS is more active in Eritrea than in South Africa, I've found the CCMS programme so inspiring, as it's taught by prominent experts in the field. I've also come to understand that one can achieve so much using 'edutainment' to inform the public about the epidemic, whether through TV characters, celebrity messaging, integrating HIV/AIDS with music, into news broadcasts and also relaying 'human-face' stories."
For Tesfagabir, the Counselling course has complemented this training in many ways. "I have more insight into the psychology of human behaviour, in particular the denial and fear that surrounds the epidemic and why this is so. Every participant was my teacher," he recalls. "We all came from such diverse backgrounds, studying and working in various sectors and disciplines, and bringing so many different stories to the group. There were medical students, help-line volunteers, a young man with a 'seeing-eye' dog called Shannon, people from various communities, some from elsewhere overseas & and their constructive advice, especially during the role-play exercises, was very helpful for many aspects of my life."
Psychology lecturer Kerry Frizelle, who designed and facilitates the eight-day course, elaborates: "What's important about this training is how it develops in response to the dynamics and profile of the participants themselves. One finds that the wider the range of social backgrounds they bring with them, the more their unique energies and experiences complement one another, so that each session proceeds within a wonderfully rich context for learning, and a remarkable balance is achieved through an informal level of dialogue."
"The informality and close bonding is very important," Kerry explains, "because a great deal of self-examination is required of the trainees, so that they can relate in a profound way to the counselling exercise. They need to grasp the magnitude of what clients are doing in taking that first step towards voluntary HIV testing. The counsellors play a vital role in such clients taking the next step (agreeing to take the test), in assuring them that they are worthy and special people no matter what their status is, and in helping them to stay HIV-negative or to cope with an HIV-positive result. A high level of professionalism is also expected: maintaining confidentiality, containing the client's and their own emotions, and processing the experience as a whole requires total commitment as well as inner strength and sensitivity."
One particular focus-topic for discussion that brought this home to Tesfagabir was that of the use of condoms in HIV prevention interventions. "In Eritrea, the name for 'condom' is 'abu selama', meaning 'dolphin'," he says. "It denotes all the qualities of the dolphin, especially its close, protective and compassionate bonding with humans."
"So, I was surprised to discover during our counselling course that the South African government imports its condoms for free distribution from China," he continues. "It made me wonder whether there is not the risk of deterioration during shipping of the condoms from overseas and the long process it probably takes for delivery. Also, using a condom, in a sexually-charged scenario, is quite complicated! Apart from knowing how to fit and use it properly, one needs to negotiate its use, be aware of the risk of tearing, and discard it carefully &".
These reservations about condoms have led him to prioritise abstinence and fidelity as more viable options for prevention of HIV transmission. "In my country, the messaging around the condom goes: 'If you're drowning in the sea of sex, you can be saved by a dolphin (condom)', but the training and research on HIV counselling I've experienced through these courses has convinced me that communicating with compassion is the key to saving lives."
For more information on the Health Promotion through Entertainment-Education course, please visit: http://www.nu.ac.za/ccms/or E-mail: [email protected]
Intensive Pre- and Post-Test HIV/AIDS Counselling Course - June/July 2003
HIVAN's Campus HIV/AIDS Support Unit, in collaboration with the School of Psychology at the University of KwaZulu-Natal - Durban, held an intensive 8-day pre- and post-test HIV/AIDS Counselling Course. Facilitated and desgined by Kerry Frizelle, the course content included, amongst other topics:
- Representations of HIV/AIDS in South Africa
- Self-awareness and worldviews
- Introduction to the TASO model of counselling
- Pre-test Counselling
- Post-test Counselling
- Understanding sexuality
- Behaviour Change - analysing the ABC-model
- Home-based Care
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Health Promotion Through Entertainment Education - Graduate Module at Culture, Communication and Media Studies at the University of KwaZulu-Natal, Durban
Ever wondered why SOUL CITY and YIZO YIZO are amongst of South Africa's most highly rated TV dramas? Or, what the relationship is between entertainment and education? Or whether people can actually change the way they think and live simply by watching television? Did you know that a study in the USA showed that serial dramas are the number one source of health information? Want to learn how to create entertainment education programmes?
Then you should register for this module in 2003 as part of the Culture, Communiation and Media Studies (CCMS) Graduate Programme. The course was inaugurated in 2002 and will be developed in 2003.
This Honours/MA module acquaints students with broad approaches to communicating for health promotion, focusing specifically on the role of entertainment education (EE). The module can also be taken on its own for certificate rather than degree purposes. Students will obtain a clear understanding of key theories of health promotion communication; of EE interventions; of how to apply theoretical understanding in the development of framework for EE activities; and will develop an ability to create criteria for the research of EE activities. The module includes an introduction to public health and health communication; theories of health behaviour, behavioural and social change; communication research and conceptual frameworks for strategic health communication. Throughout the course, the relation of EE to other modules - eg. development communication, visual anthropology, media in the global world, media and society etc. - is demonstrated and theorised through practical assignments.
CCMS works with academics and professionals from three partner organisations: the Johns Hopkins University Center for
Communications Programs, Baltimore, USA; the Centre for AIDS Development, Research and Evaluation (CADRE - Johannesburg, Cape Town, Grahamstown) and Drama in Aids (DramAidE), CMS's Durban partner. Other contributors include SOUL CITY.
- Students/Internships/Projects
Students will be located, where possible, within the research, administrative, and project infrastructures of CADRE and DramAidE as well as the Development, Media and Arts Research Unit. This Unit, a joint venture between CCMS and DramAidE, is geared towards action research relating to health communication. The Unit works via DramAidE with schools and grassroots community organisations, especially on life skills and HIV/AIDS prevention and education. The funded research is project-based and designed to teach graduate students to work in the field on actual projects, and with real benefiting communities. Selection of South African candidates for the annual internships and bursaries will be based on relevant project experience and commitment to delivery, ability to work in teams, and commitment to full-time studies in the field. Students will thus receive specialised supervision and field experience via these participating NGOs. CCMS has a vibrant graduate community composed of students from Africa and all over the world.
For further information, please visit: http://www.nu.ac.za/ccms/or E-mail: [email protected]
BESG Special Needs Housing Programme - a response to HIV/AIDS and vulnerability
In 2000, the Built Environment Support Group (BESG), together with the affiliates of the Urban Sector Network (USN), embarked on a USAID-funded programme to capacitate the sector around issues of HIV/AIDS and urban development. The programme became part of a broader process to formulate a comprehensive and integrative Special Needs housing programme for BESG.
The components of BESG's programme are outlined as follows: Supportive Housing Pilots; Applied Research and Assessment and Advocacy and Policy Development.
BESG's programme strives to create supportive physical and social environments for those who are affected by HIV/AIDS and other life-threatening problems. This target group has limited access to resources and BESG believes that mitigating the impact of the epidemic on households and local communities should be a core aspect of its overall strategy. BESG is committed to participative and inclusive planning and development processes to achieve this purpose.
Supportive Housing Pilots
BESG works in partnership with various organisations who share this purpose and focus. These include Children in Distress (CINDI) Network partners, Durban Children's Society, Kokstad Child Welfare Society and Project Preparation Trust.
Examples of pilot projects undertaken:
Provision of transitional care:
Ekhaya Lethemba Place of Safety, Pietermaritzburg: the renovation and conversion of dilapidated turn-of-the-century houses in the CBD to provide short-term cluster foster-care for children who are abandoned or otherwise at risk, prior to being placed in foster-care or adopted in the community
Project Hope, Kokstad: the renovation and conversion of a former farmhouse and outbuildings to provide alternative shelter, food security and a base for skills development for streetchildren living off a nearby municipal refuse site
Provision of Shelter Support for Home-based Care:
Avocating home-based care: BESG is working with agencies and communities in Bongweni, Kokstad and in Inanda, Durban to investigate ways of providing shelter support for families who provide care to individuals either affected or infected by HIV/AIDS
Sam Club, Inanda, Durban: Investigation into ways in which creche supervisors can be assisted through shelter support. Incidence of creche supervisors providing permanent care for children whose parents are no longer able to fulfill the role is increasing. A pre-feasibility study is being undertaken to assess the support alternatives available with a view to identify a suitable approach.
Community Family Care:
Development of Community Family Homes, Cato Manor, Durban: In partnership with Durban Children Society, the development and design of family homes in community areas where orphaned children are cared for in a family environment. The family homes being piloted accommodate a maximum of six children who are cared for by community parents or mother.
Applied Research and Assessment:
Questions guiding this process include: What is the impact of AIDS on a household's ability to obtain and maintain accommodation? What institutional and community support is currently available to households whose vulnerability increases as a result of AIDS? How do community groups and local institutions respond to increasing demands for their services?
In December 2002, a scoping exercise was initiated to identify the range of housing and related resources for persons affected by AIDS. Following preliminary discussions with AIDS education and outreach organisations, the project was refined to examine the impact of the current financial and regulatory environment on the capacity of housing responses and social service provision. The document is available from BESG and on www.usn.org.za.
Two research projects undertaken by BESG to date are:
- The impact of illness and death on coping and adaptive strategies of poor households.
- The effect of HIV/AIDS on chronic and transitory homeless: A profile of the impact of HIV/AIDS on street-children.
Advocacy and Policy Development
In November 1999, the KZN Provincial Department of Housing issued Policy Guidelines for AIDS Housing as a component of the Transitional Housing Subsidy. The Policy covers three areas: Cluster homes or children's villages for "AIDS orphans"; Transitional housing for adults or children who lose a breadwinner; Provision of facilities for home-based care where families are prepared to assist People with AIDS (PWAs) or orphans of AIDS.
The majority of children infected with or affected by HIV/AIDS continue to live in their communities. Statutory and NGO welfare service providers support the extended family and community care approach, which is reflected in the government's 1997 White Paper on Social Welfare.
While the KwaZulu-Natal Provincial Department of Housing acknowledges the de facto situation in its HIV/AIDS policy, and recognises the need to support such initiatives, it has not developed a subsidy mechanism, due to the perceived risk of widespread misuse of such funds.
In low-income households, fostering in the community routinely leads to overcrowding in inadequately sized, state-subsidised housing and overuse of basic sanitation, designed for a nuclear family unit. Resultant conditions become ideal for the spread of opportunistic infections and further exacerbate vulnerability.
Consequently, a proposal for a new subsidy instrument is being developed. It is intended to provide a one-room home extension and/or additional toilet facility for foster parents or carers recognised by the Department of Welfare.
Technical support to welfare service-providers and CBOs
It has been recognised that a focus on housing limits the range of interventions that can be supported by welfare service-providers and CBOs, most of whom are involved in home-based care training, counselling and palliative programmes. Effective partnerships formed between BESG and NGO / community-based service-providers have given them access to technical expertise so as to conceptualise, realise and sustain projects that need a physical base. Examples include:
- Buthokuhle Shelter, Slangspruit: reconstruction of cr?che for the Slangspruit Community Child Care Committee, in partnership with Thandanani Association
- Umvoti AIDS Centre: advice (to date) on acquisition and conversion of a former Sappi barn and residential buildings for a training/drop-in advice centre-
- Dambuza Clinic: technical support to refurbish an abandoned clinic for use as a drop-in advice, counselling and community support centre by a consortium of CINDI NPOs
- Grannies and Orphans Project: technical support to PADCA (Pmb Care of the Aged) to establish a day-care and respite facility for grandmothers caring for extended family orphans
Contact Details for the Built Environment Support Group (BESG): Telephone: 031 260 2267 / Facsimile: 031 260 1236.
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(Nurses Group) From left: Sisters Thandi Sikhakhane, Prikashi Mekhraj, Thandi Cele and Kezia Mgwenya
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Reportback on University of KwaZulu-Natal's HIV/AIDS Nursing Workshop
The University of KwaZulu-Natal's School of Nursing, in partnership with Partners AIDS Research Centre (Boston University, Massachusetts, USA) held a three-day national Workshop for South African nurses during July 2002, focusing on HIV/AIDS management and care. This event followed a "Think Tank" entitled "South African Nurses' Response to HIV/AIDS" held in February 2002, and covered:
- Immunology and the HI Virus
- HIV/AIDS Laboratory testing and monitoring
- Anti-retroviral drug types, adherence and management
- Side-effects of and nursing implications for anti-retroviral therapy
- Symptom management and care of HIV/AIDS patients
- The role of nurses and health workers in prevention, treatment and care
- Forming support groups for HIV/AIDS infected and affected individuals
- Small group discussions on cultural issues, spirituality, substance use and political considerations
Representatives were invited from the KZN Department of Health, health service areas and other tertiary institutions from across SA and the USA. The key speakers were:
Professor Donna Gallagher - Associate in Family Care, University of Massachusetts Medical Centre, USA
Sheila Davis - Adult Nurse practitioner in AIDS Research Outreach from Massachusetts Hospital, USA
Dr Patricia McInerney - Senior Lecturer, University of KwaZulu-Natal School of Nursing
Dr Sarah Mahlangulu - Lecturer, University of KwaZulu-Natal School of Nursing
Analysis of the evaluations submitted by the delegates reveals that a high percentage responded positively to the workshop, commenting in particular on the knowledgeable and amiable speakers, informative presentations with both theoretical and practical grounding, the provision of comprehensive notes, the informal interaction and
feedback sessions, the opportunity to network with colleagues and the spirit of comradeship demonstrated.
Topics of special interest were anti-retroviral drug therapies and the infection/disease process (how the virus develops, matures and replicates). noting in particular the scientific knowledge and new information presented on the virus's life-cycle, the CD4 cell count, drug management and side-effects, and the clinical manifestation of the stages of HIV/AIDS. The delegates felt they gained a lot from realistic perspectives on prevention strategies, problems affecting youth, the formation of support groups as well as on drug adherence issues.
Participants indicated that the workshop focused more on knowledge than on skills development, but they were confident that they would be able to apply this knowledge in clinical practice. They also reported that they had gained more insight into the importance of accommodating cultural issues and religious beliefs when dealing with infected and affected people.
In general, the workshop inspired new ideas and thoughts amongst the delegates, challenging them to further their knowledge and sharpen their skills in the area of HIV/AIDS. There was consensus that much awareness of international and First World perspectives on the epidemic had been gained, which led delegates to suggest topics for further research in the South African context. Some felt that all academic and professional nurses should have been targeted as audience participants, and that follow-up workshops should include representatives from the Medical School and other health bodies such as health care managers, pharmacists, hospices, support groups, doctors and the Department of Health. They felt that responses from such individuals would have been very helpful during group sessions. About 21% of the delegates felt that South African nurses are ready for management of clients on anti-retroviral therapy, but they
highlighted the need for interactive fora to share ideas, information and experiences in this regard. All participants indicated a need for ongoing dissemination of updated information on the topics covered (especially on pharmacological management and palliative care skills) through workshops and reading material circulated at institutional
level.
In formulating a way forward, it had been agreed that an e-mail list of participants and presenters should be established to sustain communication. Setting up resource centres throughout the country was seen as imperative in order to provide broad access to updated information, and a role for HIVAN's in disseminating useful HIV/AIDS material for nurses was noted. The need for further, more widely advertised workshops of this nature was highlighted, as was that of incorporating HIV/AIDS knowledge and skills into training programmes.
(Note: An article by Lynne Altenroxel, published in The Star newspaper of 12 August 2002, covered a recent study by Wits University's Centre for Health Policy showing that only 15% of Gauteng's nurses could identify common AIDS-related conditions and that only 7% of these would know how to treat them. A mere 10% of frontline healthcare providers had received specific training in clinical management of HIV/AIDS).
The study had been commissioned by the Gauteng Health Department and conducted at 50 of the province's 405 clinics during May to August 2001. Despite these findings, however, the study concluded that there was "considerable potential" for integrating training in HIV/AIDS care into the primary healthcare system, as long as formal clinical support was provided. Also, 86% of the clinics surveyed are working with NGOs to provide such care, 54% are linked to HIV/AIDS support groups, and 38% are linked to either hospice or home-based care programmes. A heartening 94% had facilities for HIV counselling and testing, and 90% had essential antibiotics in stock.)
AIDS and the Law Training
South Africa continues to have one of the fastest growing HIV epidemics in the world, with an estimated 4,7 million people currently living with HIV. Furthermore although the legal system provides a protective framework that prohibits unfair discrimination, widespread abuses of rights occur. This is in many respects due to:
- low levels of legal literacy regarding HIV/AIDS;
- the high levels of discrimination and stigma which act as a disincentive to persons who wish to take legal action high may expose them to publicity;
- a lack of expertise and knowledge within the legal profession on HIV and the law; and
- law of legal support services such as NGOs to take on cases.
In order to enhance the exposure of law students to HIV and the law and to develop their capacity to respond to such issues the Faculty, in partnership with the Nelson Mandela Medical School, The Centre for HIV/AIDS Networking (HIVAN) and the AIDS Intervention Office piloted the above mentioned two-day training programme for intermediate and final year law students. This training took place at the Pietermaritzburg campus on 1 and 2 August 2002. Thirty students, from both Durban and Pietermaritzburg, received training.
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